Idea: what do you think of copying Orthodox Jewish women who wear scarfs covering their whole heads? I know they are doing it for different reasons but…
Thanks, Cheryl, but it’s not really appearances that I’m worried about. I have so much thick, curly hair on my head that no one but my family and I will notice for a while yet that my hair is falling out. I don’t care about vanity right now; what I’m so concerned about is everything that’s going so incredibly, terribly wrong with my body, and the fact that not a single doctor seems to have any hint of an answer. It’s honestly starting to feel like I’m literally falling apart, and no one seems to notice. I’ve been to see so many specialists, so many supposed experts, and no one has any idea what’s happening. It’s so scary. The last time I swelled up, after one of the operations I had, I only gained 45 pounds of fluid, and I was hospitalized for it. I remember one of the nurses going on about how dangerous it is to gain any more than 50 pounds of fluid, and anything above that should lead to direct hospitalization and intense observation. I’ve gained 90 and no one’s doing anything. My Mom and I are trying so hard, looking in every possible specialty, trying every single idea. And yet we can’t find anything. And… it’s starting to feel so hopeless. Like am I really destined to die because everyone doesn’t want to spend any of their precious time doing any research? I can’t even begin to tell you how many doctors have literally thrown up their hands in disgust and said, “Just go to NIH!” But the problem is, the National Institute of Health may be close, but they don’t just accept everyone who shows up at their door. They aren’t doing any tests related to my condition, so they can’t and won’t help me. So I’m stuck with specialists who don’t want to do their job because my case is difficult, and because it’s so much easier to come up with excuses and pass their problems off to someone else.
*sigh* This comment turned into a blog entry… oops.
Perhaps since none of the doctors you’re seeing have an answer, it might be a good time to try something a little more unorthodox. That said, I personally know Robyn, and while I think some of her ideas are a little over the top, MOST of what she’s advocating is difficult to refute. She and her kids are some of the healthiest people I know (hard to argue with that too). Anyway, at least watch her YouTube video and spend a little time reading about her nutritional journey (don’t be too quick to dismiss her as a wingnut). :^)
Thanks, Anyone. I’ll check it out. I have tried several unconventional treatment options, but unfortunately it’s not always easy to find something that works. I’ve tried accupuncture, massage, lymphatic drainage, specific exercises, alternate diets, and more. I even tried herbal supplements, but unfortunately, that didn’t go so well. A lot of supplements, herbs, and “vitamins” contain ingredients that I’m highly allergic to. And since so many of those aren’t regulated, they don’t always have to include complete lists of what’s inside. For instance, I’m literally deathly allergic to mushrooms, but mushrooms and mushroom extract are in practically everything. They’re used in supplements quite often, and I’ve had several respectable supplement experts tell me to just avoid herbal supplements all together, since it’s impossible to find out for certain whether they’re included in those supplements or not. I tried once and not only did it cause my throat to swell shut, but it also caused such severe gastric complications that I was sick for weeks.
So I’ll look into it, but I can’t promise much. Unless supplements and alternative medicine can change my genetic structure, I’m not sure they’ll be able to accomplish much.
Don’t worry, You’re still beautiful 🙂
I’m not a religious person by any means, but I do say a prayer for a few people and you’re one of them. I am so hoping that you get better.
Idea: what do you think of copying Orthodox Jewish women who wear scarfs covering their whole heads? I know they are doing it for different reasons but…
Thanks, Cheryl, but it’s not really appearances that I’m worried about. I have so much thick, curly hair on my head that no one but my family and I will notice for a while yet that my hair is falling out. I don’t care about vanity right now; what I’m so concerned about is everything that’s going so incredibly, terribly wrong with my body, and the fact that not a single doctor seems to have any hint of an answer. It’s honestly starting to feel like I’m literally falling apart, and no one seems to notice. I’ve been to see so many specialists, so many supposed experts, and no one has any idea what’s happening. It’s so scary. The last time I swelled up, after one of the operations I had, I only gained 45 pounds of fluid, and I was hospitalized for it. I remember one of the nurses going on about how dangerous it is to gain any more than 50 pounds of fluid, and anything above that should lead to direct hospitalization and intense observation. I’ve gained 90 and no one’s doing anything. My Mom and I are trying so hard, looking in every possible specialty, trying every single idea. And yet we can’t find anything. And… it’s starting to feel so hopeless. Like am I really destined to die because everyone doesn’t want to spend any of their precious time doing any research? I can’t even begin to tell you how many doctors have literally thrown up their hands in disgust and said, “Just go to NIH!” But the problem is, the National Institute of Health may be close, but they don’t just accept everyone who shows up at their door. They aren’t doing any tests related to my condition, so they can’t and won’t help me. So I’m stuck with specialists who don’t want to do their job because my case is difficult, and because it’s so much easier to come up with excuses and pass their problems off to someone else.
*sigh* This comment turned into a blog entry… oops.
Perhaps since none of the doctors you’re seeing have an answer, it might be a good time to try something a little more unorthodox. That said, I personally know Robyn, and while I think some of her ideas are a little over the top, MOST of what she’s advocating is difficult to refute. She and her kids are some of the healthiest people I know (hard to argue with that too). Anyway, at least watch her YouTube video and spend a little time reading about her nutritional journey (don’t be too quick to dismiss her as a wingnut). :^)
Hm, seems you don’t allow embedded URLS. Here’s the link I tried to include:
www dot greensmoothiegirl dot com
Thanks, Anyone. I’ll check it out. I have tried several unconventional treatment options, but unfortunately it’s not always easy to find something that works. I’ve tried accupuncture, massage, lymphatic drainage, specific exercises, alternate diets, and more. I even tried herbal supplements, but unfortunately, that didn’t go so well. A lot of supplements, herbs, and “vitamins” contain ingredients that I’m highly allergic to. And since so many of those aren’t regulated, they don’t always have to include complete lists of what’s inside. For instance, I’m literally deathly allergic to mushrooms, but mushrooms and mushroom extract are in practically everything. They’re used in supplements quite often, and I’ve had several respectable supplement experts tell me to just avoid herbal supplements all together, since it’s impossible to find out for certain whether they’re included in those supplements or not. I tried once and not only did it cause my throat to swell shut, but it also caused such severe gastric complications that I was sick for weeks.
So I’ll look into it, but I can’t promise much. Unless supplements and alternative medicine can change my genetic structure, I’m not sure they’ll be able to accomplish much.
Don’t worry, You’re still beautiful 🙂
I’m not a religious person by any means, but I do say a prayer for a few people and you’re one of them. I am so hoping that you get better.